A survey of life in recovery for families
Yesterday (26 February 2018) Sheffield Hallam University and Adfam published a new study: Understanding recovery from a family perspective: a survey of life in recovery for families. Funded by Alcohol Research UK, the report is a large scale study into the impact of recovery from drug and alcohol dependence on family members.
A growing body of research describes how the lives of dependent drinkers (and drug users) can change as they move from active addiction to recovery. The Life in Recovery surveys in the US, UK, Australia, Canada and South Africa all reveal marked improvements in physical and psychological health, family functioning, employment and education, reductions in crime and improvements in community engagement. However, no surveys have, until now, assessed the experience of recovery from the perspective of family members.
For family members, recovery is experienced in two senses. They observe the journey of the recovering drinker; however, they also embark on their own journey of change as a consequence of their experiences. The report seeks to describe both these aspects.
This project adapted the Life in Recovery survey to capture the experiences of family members around recovering drinkers. Designed with service user input, there were 1,565 valid completions of the online survey.
- 48.1% of respondents were parents
- 23.6% spouses or ex-spouses
- 10.3 were children
- 8.7% were siblings
- 1.3% were friends
The majority of participants were women (87.7%) and the average age was 52. The majority (81.6%) described their ethnicity as White British or White. Around two-thirds of the sample were married or living with a partner. Just over half (51.4%) were in regular employment, and a similar number had a degree or postgraduate qualification. The sample, therefore, had higher qualifications than the national average, which suggests a skew towards people with higher levels of ‘cultural capital’ among respondents. This should be borne in mind when interpreting the results.
Over one-third of the sample (36.9%) were receiving help or treatment for emotional or mental health problems at the time of survey completion, with 71.9% having received help at some point for emotional or mental health issues.
Respondents reported family members with a number of dependencies, often multiple:
- 62.6% alcohol
- 67.7% illicit drugs
- 34.8% prescription drugs
- 7.3% ‘legal highs’ or Novel Psychoactive Substances
The average length of the substance-using career was 14.1 years. 78.8% had attended a treatment programme at some point for their addiction problems.
Although the survey was initially targeted at those in recovery, 33.2% of former users had relapsed at the time of the survey, according to the responding family member. The family members of those who had relapsed reported poorer physical and psychological health, and poorer quality of life than those whose family members were still in recovery.
Findings – family
- 55.1% of respondents reported having debts during their family member’s active addiction, compared to 44.0% during recovery 2
- 27.7% of respondents reported that they couldn’t pay their bills during their family member’s active addiction, compared to 17.6% during recovery
- 31.7% were victims of family violence during their family member’s active addiction, compared to 10.5% during recovery
- 4.7% were perpetrators of family violence during their family member’s active addiction, compared to 0.9% during recovery
- 46.1% had untreated emotional or mental health problems during their family member’s active addiction
- 8.7% had frequent use of healthcare services during their family member’s active addiction period, compared to 2.7% during recovery
- 5.0% of respondents were arrested while their family member was in active addiction, compared to 2.0% during recovery
- 12.9% of respondents drove under the influence of alcohol or drugs while their family member was in active use, compared to 3.9% when they were in recovery
- 3.4% of respondents served prison time while their family member was in active use, compared to 1.2% when they were in recovery
- 8.7% of respondents were fired or suspended from work while their family member was in active use, compared to 4.0% when they were in recovery
- 59.2% of respondents got positive work appraisals while their family member was in active addiction, compared to 89.9% during recovery
These effects were even more dramatic when the drinkers or substance users who had relapsed were considered separately. Respondents also reported high rates of grief in relation to the perceived loss of the person drinking heavily (even though they had not died in most cases) and elevated rates of stress, although these tended to diminish as their loved one started their recovery journey.
Findings – individual
The proportion of drinkers who were victims of family violence fell from 26.3% to 9.0% when they entered recovery. The proportion who were perpetrators of family violence fell from 33.4% to 11.3%.
This report highlights the toll that addiction exerts not only on individual drinkers but on those around them, and it clearly establishes the importance of recovery in mitigating some of these adverse effects. At the same time, it shows that while families as a whole experience significant benefits through the recovery journey of loved ones, not all of the emotional damage is reversed, and relapse undermines at least some of the positive gains.
It is clear that family members need support not only to assist loved ones dealing with addiction but in their own rights. The challenges faced by many of our participants in finding the right kinds of support suggests that such services are both needed and inadequately provided, with too great a reliance on voluntary community groups run by committed peers.
This report confirms the need for a focus on families, as well as individual substance users, when planning treatment and recovery interventions. It shows that family members are both a resource to support recovery, and people whose own lives can be transformed through recovery. Supporting families is essential to developing an integrated approach to reducing alcohol harms, and understanding the experiences of family members plays a key role in achieving this goal.
Family members of people in addiction and recovery have important things to say, and yet their voices are rarely heard. While there is a well-established research evidence base showing the impact of addiction on the lives of drinkers (and other substance users) themselves, this is the first piece of work that illustrates the impact – across multiple domains – on family members around dependent drinkers. The effect of living with a family member who is dependent on alcohol or other substances is substantial and long-lasting: over 70% of participating family members reporting lifetime emotional or mental health problems, and over one-third suffered from those problems at the time of the survey.
Whether the person with substance use issue is currently using clearly affects the wellbeing of family members. Those family members who reported that a loved one was in recovery showed markedly better functioning across all of the areas of physical and psychological health, and quality of life than when the loved one had relapsed. In other words, family members are not only positively influenced by the recovery of the dependent drinker, they are also susceptible to reversals if these gains are lost. This is critical given the finding that the impact of recovery crosses so many domains of the family members’ lives.
Having worked with addicts and family members including children I can fully agree with these findings. People who live with or are in close contact with addicts have a miserable time of it. I have been told by my wife that she dreaded coming home from work because she didn’t know what she would find. I was a nightmare when I was a chronic alcohol user, the upset I caused still makes me emotional. I have been sober 15 years now but I remember the tears , the shouting , the pleading for me to stop. But an alcoholic never listens and carries on regardless. This is an area of work I would like to return to but I fear that my age at 62 puts me out of finding a position in this field. These family members and friends are not catered for.
Thanks very much for sharing your story in such an honest and helpful fashion.